[…] questions we are often asked is how will pregnancy and child-bearing affect an individual with FSHD? And because FSHD is passed on from generation to generation, what are the options […]
Pregnancy and reproductive genetic counseling
Women on Wellness – Clothing Hacks and more
The “Women on Wellness” Zoom group is for women with FSHD to discuss female-focused health and other topics. These notes are from the November 3, 2021, meeting, which began with […]
Fulcrum’s Phase 3 trial news – what does it mean for patients?
[…] will proceed with a Phase 3 clinical trial of losmapimod is big news for the FSHD community. It means that the FDA has considered the data from the Phase 2b […]
About ankle-foot orthoses (AFOs)
Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring […]
Promising findings from Avidity’s myotonic dystrophy trial
[…] for the disease. DM1 is a genetic, muscle-damaging disease that affects children and adults. Like FSHD, myotonic dystrophy weakens muscles in the face, hands, feet, and other areas of the […]