[…] about raising funds to speed a cure for the estimated one million people affected by FSHD Muscular Dystrophy. Many of you responded with generous contributions and I am pleased to […]
Helen Younger Memorial Fund
Voice of the Patient Report
On June 29, 2020, the FSHD Society convened the Voice of the Patient Forum, our community’s externally led patient-focused drug development (EL-PFDD) meeting to educate the FDA and other stakeholders […]
$447,620 in funding for four new projects
The FSHD Society Board of Directors approved $447,620 in funding for four projects submitted in the February 2019 cycle. These grants will move forward four distinct strategies that show promise. […]
Volleyball fundraiser
By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I […]
St. Louis Chapter
[…] to the St. Louis Chapter! Thank you for visiting the St. Louis Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, […]