Welcome to the Columbus Chapter! Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family […]
Columbus Chapter
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD). “FSHD has impacted someone very dear to me, and I therefore wanted to do […]
Find your voice through FSH Society radio
[…] but also considering how this medium can give our community a greater voice. At the FSHD Connect conference, host Tim Hollenback issued a call to action to the FSHD community. […]
ACE-083 Phase 2 trial results presented at AAN conference
Preliminary results from the ongoing phase 2 clinical trial of ACE-083 in FSHD patients were presented today at the American Academy of Neurology 70th Annual Meeting in Los Angeles, California.The […]
Knowing others who share your diagnosis makes you happier
[…] disability We at the FSH Society have long believed that helping individuals and families with FSHD meet one another is one of the most important services that we provide. It’s […]