Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question […]
True Cost of FSHD survey
A trio of promising advances toward treating FSHD
Commentary by Emanuele Mocciaro, PhD, San Raffaele Scientific Institute, Milan, Italy Facioscapulohumeral muscular dystrophy ( FSHD) is caused by the “anomalous” reactivation of the DUX4 gene. DUX4 has an important […]
FSHD Society releases Voice of the Patient Report
[…] severity of disease symptoms and urgent need for treatment LEXINGTON, MASS. (PRWEB) NOVEMBER 12, 2020 The FSHD Society has released its Voice of the Patient Report, a landmark publication based on its […]
FSHD Society Announces 2020 Conferences
[…] host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders. REGISTER HERE. The FSHD Society’s 27th annual International Research Congress (IRC) will be held on June 25-26, 2020, […]
Walk & Roll to Cure FSHD
The Walk & Roll to Cure FSHD is focused on raising funds across North America to end FSHD Walk & Roll Locations Stay tuned! We’ll be adding our 2025 Walk […]