[…] be sharing these stories from fellow FSH Society members that demonstrate how they won’t let FSHD stand in their way. Your support is life-changing to people like Kelly, Amy, Jeremy […]
Looking Back on A Year Full of Strength
Waking up your muscles with Lynnette Rasmussen
by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal […]
Imaging study shows positive effects of exercise and CBT on muscle degeneration
[…] and cognitive behavioral therapy (CBT) decreased fatigue and improved the quality of life significantly in FSHD patients. Now, the same group has published a study demonstrating that not only did […]
Hot off the press: FSH Watch
[…] of FSH Watch is here! Highlights: Clinical Trial Research Network receives major NIH award World FSHD Day 2017 FSHD Family Day Conference in Columbus, Ohio Bone health and FSHD FSH […]
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
[…] The Society’s track record of success in advancing research initiatives in facioscapulohumeral muscular dystrophy ( FSHD) is unmatched, and I am excited about working collaboratively with the founder, our involved […]