[…] drugs would potentially provide the first treatment option for slowing or stopping disease progression in FSHD. By screening drug libraries in FSHD cells grown in the laboratory, we have identified […]
Placing a BET on blocking DUX4
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
[…] The Society’s track record of success in advancing research initiatives in facioscapulohumeral muscular dystrophy ( FSHD) is unmatched, and I am excited about working collaboratively with the founder, our involved […]
Hot off the press: FSH Watch
[…] of FSH Watch is here! Highlights: Clinical Trial Research Network receives major NIH award World FSHD Day 2017 FSHD Family Day Conference in Columbus, Ohio Bone health and FSHD FSH […]
2025 Volunteer Leadership Summit
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.” – anonymous “Seeing […]
A passion for adventure and advocacy
[…] it reminded me just how much is still out there to see.” Don’s connection to FSHD runs deep. His family is affected and has known about the disease since the […]