[…] Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers and how they […]
Working out with a personal trainer
Imaging study shows positive effects of exercise and CBT on muscle degeneration
[…] and cognitive behavioral therapy (CBT) decreased fatigue and improved the quality of life significantly in FSHD patients. Now, the same group has published a study demonstrating that not only did […]
A note to our families from CEO Mark Stone
[…] horizon. Avidity Biosciences, Dyne Therapeutics, Arrowhead Pharmaceuticals, Roche, miRecule, and other companies are actively pursuing FSHD therapies. On a personal note, allow me to express my appreciation to the hundreds […]
Remembrance of Lilleen Walters
[…] MD PhD Lilleen Walters and Kathryn Wagner I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her […]
It’s alive! It’s alive!
[…] solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists, and arms […]