[…] drugs would potentially provide the first treatment option for slowing or stopping disease progression in FSHD. By screening drug libraries in FSHD cells grown in the laboratory, we have identified […]
Placing a BET on blocking DUX4
Knowing others who share your diagnosis makes you happier
[…] disability We at the FSH Society have long believed that helping individuals and families with FSHD meet one another is one of the most important services that we provide. It’s […]
ACE-083 Phase 2 trial results presented at AAN conference
Preliminary results from the ongoing phase 2 clinical trial of ACE-083 in FSHD patients were presented today at the American Academy of Neurology 70th Annual Meeting in Los Angeles, California.The […]
Find your voice through FSH Society radio
[…] but also considering how this medium can give our community a greater voice. At the FSHD Connect conference, host Tim Hollenback issued a call to action to the FSHD community. […]
My journey continues
[…] I won’t lie: That scared me. I’ve always tried to have a positive outlook, but FSHD was starting to break me. I have great support from family and friends, but […]