[…] the generosity and courage of our patient community who volunteer for important clinical studies in FSHD. Many of you have given your valuable time, undergone complicated muscle strength test, filled […]
It’s Time to Act: Take Our Muscle Biopsy Survey
Why Your Voice Matters
This April 21, the FSHD Society is holding its landmark Voice of the Patient Forum on drug development for FSH muscular dystrophy. You will be hearing a lot about it […]
CEO’s 2020 second quarter report
Mark Stone, the FSHD Society’s president and CEO, reported on the Society’s activities at his second quarter report to stakeholders on May 20, 2020. The webinar recording is now available […]
Voice of the Patient – The Biopharma perspective
[…] FDA’s Patient-focused Drug Development initiative is a powerful tool to facilitate this focus. The newly-released FSHD Voice of the Patient Report is a case in point. The FSHD Society organized […]
Legacy planning made simpler
[…] you have ever wished that you could do more to help in the fight against FSHD, we invite you to consider joining the FSHD Society Legacy Circle by including the […]