[…] along with the deep commitment that comes from having loved ones who are affected by FSHD. Christine Ford Christine Ford is a business graduate of California State University, Sacramento. She earned […]
Meet our newest Board of Directors members
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They […]
Roche MANOEUVRE Trial
[…] and what the side effects of taking it might be. How does the medicine work? FSHD causes muscle cells to die. RO7204239 blocks a protein in the muscles called myostatin. […]
FSH Society commits over $1.38 million to research in 2016
[…] that aim to break new ground in the search for a treatment and cure for FSHD. These grants bring the total research funding committed by the FSH Society in 2016 […]
Your practical guide to clinical trials
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting. […]