When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Gretchen Evans speaking at the Volunteer Leadership Summit. Army Command Sgt. Maj. Gretchen Evans […]
Find your rope team
Vita Therapeutics seeks volunteers
Participate in a research study on a muscle regenerating treatment for FSHD Vita Therapeutics is a cell engineering company harnessing the power of genetics to develop cellular medicines in the […]
The Power of 25 – Our Spring Challenge Campaign
[…] what the world would be like for you, your family, and loved ones living with FSHD if the FSH Society had not existed for the past quarter-century: You would have […]
ACT to improve quality of life
by Kent Drescher, PhD, Bay Area Chapter Co-Director I’ve had FSHD symptoms for over 50 years. It seems like I’ve spent much of that time waiting. Waiting for treatment. Waiting […]
Talking to my 16-year-old self
[…] bio reads: “Rabbi Haviva Ner-David lives with a degenerative genetic form of muscular dystrophy called FSHD, which has been one of her greatest teachers.” Me at 16. I was born […]