[…] the Society. Back then, almost no one was doing research on facioscapulohumeral muscular dystrophy ( FSHD). The human genome had not yet been mapped. The internet was in its infancy. […]
What a difference 30 years have made
Partners in Pain, Harbingers of Hope
[…] the cultural differences and history of conflict between our two peoples. I was diagnosed with FSHD at age 16, the first in my family that we know of with FSHD […]
Financials
2023 Financials Summary The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Over the last […]
Connect
No one should ever face FSHD alone. We work to connect patients, family and loved ones to others who understand firsthand what you’re going through. Whether you are looking for […]
Glossary of Scientific Terms
[…] Scientific Terms 4q35. A cytogenetic term that defines the “address” of the chromosomal deletion associated with FSHD Type 1. The deletion is on chromosome 4, on the “q” (long) arm at […]