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Busting myths about orthotics
Our Partners
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Partners in Pain, Harbingers of Hope
[…] the cultural differences and history of conflict between our two peoples. I was diagnosed with FSHD at age 16, the first in my family that we know of with FSHD […]
What a difference 30 years have made
[…] the Society. Back then, almost no one was doing research on facioscapulohumeral muscular dystrophy ( FSHD). The human genome had not yet been mapped. The internet was in its infancy. […]
Voice of the Patient – The Biopharma perspective
[…] FDA’s Patient-focused Drug Development initiative is a powerful tool to facilitate this focus. The newly-released FSHD Voice of the Patient Report is a case in point. The FSHD Society organized […]