[…] to families Since the genetic disease mechanism was discovered in 2010, facioscapulohumeral muscular dystrophy ( FSHD) research has gained tremendous momentum. Recent breakthroughs have brought us to a new world. […]
Therapeutic Accelerator
Talking to my 16-year-old self
[…] bio reads: “Rabbi Haviva Ner-David lives with a degenerative genetic form of muscular dystrophy called FSHD, which has been one of her greatest teachers.” Me at 16. I was born […]
ACT to improve quality of life
by Kent Drescher, PhD, Bay Area Chapter Co-Director I’ve had FSHD symptoms for over 50 years. It seems like I’ve spent much of that time waiting. Waiting for treatment. Waiting […]
Vita Therapeutics seeks volunteers
Participate in a research study on a muscle regenerating treatment for FSHD Vita Therapeutics is a cell engineering company harnessing the power of genetics to develop cellular medicines in the […]
Find your rope team
When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Gretchen Evans speaking at the Volunteer Leadership Summit. Army Command Sgt. Maj. Gretchen Evans […]