The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They […]
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
Leadership Volunteers Training Series
[…] all the tools, insights, tricks, and tips you need to make your work with the FSHD Society more fulfilling and effective, we’ll be providing regular monthly training opportunities. Catch up […]
Roche MANOEUVRE Trial
[…] and what the side effects of taking it might be. How does the medicine work? FSHD causes muscle cells to die. RO7204239 blocks a protein in the muscles called myostatin. […]
Connecting to others is essential to your health
[…] number that you’ll ever do.” For all of us, particularly those with a challenge like FSHD, it is all too easy to relate to this song – unless we establish […]
It’s alive! It’s alive!
[…] solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists, and arms […]