[…] MD PhD Lilleen Walters and Kathryn Wagner I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her […]
Remembrance of Lilleen Walters
A note to our families from CEO Mark Stone
[…] horizon. Avidity Biosciences, Dyne Therapeutics, Arrowhead Pharmaceuticals, Roche, miRecule, and other companies are actively pursuing FSHD therapies. On a personal note, allow me to express my appreciation to the hundreds […]
The Future Is Now
[…] been made possible through the continued invaluable involvement and investment of our supporters and the FSHD community at large. With the continued involvement and investment of our dedicated FSHD community: […]
Working out with a personal trainer
[…] Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers and how they […]
A passion for adventure and advocacy
[…] it reminded me just how much is still out there to see.” Don’s connection to FSHD runs deep. His family is affected and has known about the disease since the […]