[…] Scientific Terms 4q35. A cytogenetic term that defines the “address” of the chromosomal deletion associated with FSHD Type 1. The deletion is on chromosome 4, on the “q” (long) arm at […]
Glossary of Scientific Terms
Connect
No one should ever face FSHD alone. We work to connect patients, family and loved ones to others who understand firsthand what you’re going through. Whether you are looking for […]
Therapeutic Accelerator
[…] to families Since the genetic disease mechanism was discovered in 2010, facioscapulohumeral muscular dystrophy ( FSHD) research has gained tremendous momentum. Recent breakthroughs have brought us to a new world. […]
Financials
2023 Financials Summary The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Over the last […]
Our team is growing!
[…] systems that will enable the Society to continue to grow and support patients and families with FSHD. “The FSH Society’s ability to fund research grants, advocate on behalf of patients, and […]