Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state […]
FSH Watch Summer/Fall 2012
FSH Society accolade for George Padberg
[…] MD, PhD. Please accept our heartfelt thanks for your dedication to unlocking the mystery of FSHD and for your guidance, concern and care for patients and their families worldwide. For […]
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD). “FSHD has impacted someone very dear to me, and I therefore wanted to do […]
UC Davis study is seeking volunteers
We have been notified that researchers at the UC Davis Medical School are seeking FSHD patients to volunteer for a study. Read here about why participating in research is so […]
Setting a new record in our funding of research
[…] review by our Scientific Advisory Board. They include deep dives into how the genetics of FSHD affects the early development of muscle cells and into the lingering and all-important mystery […]