[…] Canada Blaine Penny and Lawrence Korngut, MD. This is a very exciting time for the FSHD community, as new therapeutics are advancing through clinical development and the global patient community […]
The Global FSHD Innovation Hub
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
[…] nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families, today announced that it has awarded a $121,000 grant to co-principal […]
Extraordinary measures – An FSHD Society for everyone
by June Kinoshita, FSHD Society Our mission at the FSHD Society is to find treatments and a cure for FSHD—and then make sure everyone in the world who needs it […]
The use of antioxidants in FSHD
[…] years, scientists around the world have begun to investigate the role of oxidative stress in FSHD. A 2018 study reported that muscle biopsies from people with FSHD had greater levels […]
2018 FSHD Connect videos!
Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for […]