[…] nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy ( FSHD) and their families, today announced that it has awarded a $121,000 grant to co-principal […]
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
Extraordinary measures – An FSHD Society for everyone
by June Kinoshita, FSHD Society Our mission at the FSHD Society is to find treatments and a cure for FSHD—and then make sure everyone in the world who needs it […]
FSHD Society partnering in €21 Million project
[…] to accelerate disease treatment and care for rare diseases See PaLaDIn Launch Press Release The FSHD Society is embarking on an exciting international collaboration to speed up the development of […]
2018 FSHD Connect videos!
Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for […]
The use of antioxidants in FSHD
[…] years, scientists around the world have begun to investigate the role of oxidative stress in FSHD. A 2018 study reported that muscle biopsies from people with FSHD had greater levels […]