[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD). “FSHD has impacted someone very dear to me, and I therefore wanted to do […]
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
DUX may be a master switch of the genome
[…] for a long time that many of the genes that DUX4 regulates are expressed in FSHD, and at these early time points.” Why would turning on this early program be […]
Talk Radio: Mindfulness with Dr. Jennifer Egert
[…] 8:00 PM CST for a live, on-air interview with Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy and workshops in Mindfulness Based Cognitive Therapy (MBCT) and […]
Why have an annual check-up?
Many people with FSHD do not see a neuromuscular doctor regularly. Told that there is no treatment, they wonder, “What’s the point?” In this video, Jeffrey Statland MD explains why […]
With a Sense of Urgency
[…] the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy ( FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a […]