[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), will be the beneficiary of a collection of fundraising events this fall. From Boston […]
FSH Society Beneficiary of Variety of Fall Fundraising Events
2015 Year-end challenge: Lighting the way to a cure
[…] 24th year, has transformed the world for the 870,000 people living with facioscapulohumeral muscular dystrophy ( FSHD). Our work, fueled by your donations and powered by our staff, Board of Directors, research […]
FSH Society submits testimony to U.S. Congress
[…] Agencies (LHHSE). This year, the Society has requested $24 million FY2017 appropriations for NIH research on FSHD. Identical testimony was submitted to the Senate. The following table from the FSH Society’s testimony […]
The FSH Watch 2016 Issue 2 is out!
[…] (cover story); Patient’s brother competes in American Ninja Warrior on NBC to raise awareness about FSHD (cover story); The establishment of a new registry for FSH patients and family members […]
Acceleron’s ACE-083 clinical trial is now open
[…] in a specific set of muscles may provide a clinical benefit to patients, such as FSHD. As an “investigational” agent, ACE‐083 is not approved by any regulatory agency for use […]