[…] Young Hollywood comes out in support of the Los Angeles Ghostly Gala (cover story) New FSHD family cell lines being released for research after 30 years in limbo (page 3) […]
The FSH Society Spring Watch is out!
2017 Los Angeles Festive Evening Fundraiser
Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being […]
With a Sense of Urgency
[…] the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy ( FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a […]
Why have an annual check-up?
Many people with FSHD do not see a neuromuscular doctor regularly. Told that there is no treatment, they wonder, “What’s the point?” In this video, Jeffrey Statland MD explains why […]
Talk Radio: Mindfulness with Dr. Jennifer Egert
[…] 8:00 PM CST for a live, on-air interview with Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy and workshops in Mindfulness Based Cognitive Therapy (MBCT) and […]