Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being […]
2017 Los Angeles Festive Evening Fundraiser
The FSH Society Spring Watch is out!
[…] Young Hollywood comes out in support of the Los Angeles Ghostly Gala (cover story) New FSHD family cell lines being released for research after 30 years in limbo (page 3) […]
Science with a heart
[…] to join Fulcrum Therapeutics, a decision that would immerse her deeply in the world of FSHD research. At Fulcrum, Ronco found herself surrounded by some of the brightest minds in […]
Putting a lifetime of lawyering to work for our community
[…] almost overnight. After visits to many doctors, he finally met one who said he had FSHD or a similar muscular dystrophy. “Nothing can be done,” the doctor told him, “but […]
Changemaker: Archer Sverdrup
[…] enjoy the thrill of the game and the camaraderie it brings. Living with symptoms of FSHD since birth, Archer has navigated a long road to diagnosis and selfacceptance. Now, they’re […]