[…] Young Hollywood comes out in support of the Los Angeles Ghostly Gala (cover story) New FSHD family cell lines being released for research after 30 years in limbo (page 3) […]
The FSH Society Spring Watch is out!
Science with a heart
[…] to join Fulcrum Therapeutics, a decision that would immerse her deeply in the world of FSHD research. At Fulcrum, Ronco found herself surrounded by some of the brightest minds in […]
Putting a lifetime of lawyering to work for our community
[…] almost overnight. After visits to many doctors, he finally met one who said he had FSHD or a similar muscular dystrophy. “Nothing can be done,” the doctor told him, “but […]
Changemaker: Archer Sverdrup
[…] enjoy the thrill of the game and the camaraderie it brings. Living with symptoms of FSHD since birth, Archer has navigated a long road to diagnosis and selfacceptance. Now, they’re […]
Why put off getting hearing aids?
[…] aids. High-frequency hearing loss, often mild, may occur in more than half of people with FSHD, but estimates vary. Hearing loss can be more profound in the early-onset form. It’s […]