…when I was first diagnosed with FSHD (infantile onset) by Archer Sverdrup, St. Louis, Missouri Progression is unpredictable. Sometimes you may go a year with only minor progression. Sometimes every […]
Ten things I wish someone had told me…
Acceleron’s ACE-083 clinical trial is now open
[…] in a specific set of muscles may provide a clinical benefit to patients, such as FSHD. As an “investigational” agent, ACE‐083 is not approved by any regulatory agency for use […]
The FSH Watch 2016 Issue 2 is out!
[…] (cover story); Patient’s brother competes in American Ninja Warrior on NBC to raise awareness about FSHD (cover story); The establishment of a new registry for FSH patients and family members […]
Clinical Trials FAQ
[…] your doctor for clinical care at least once per year. Your doctor will monitor your FSHD and your overall health and can provide any medical treatments or referrals you may […]
FSH Society accolade for George Padberg
[…] MD, PhD. Please accept our heartfelt thanks for your dedication to unlocking the mystery of FSHD and for your guidance, concern and care for patients and their families worldwide. For […]