[…] services I normally use. She even took the time to watch my daughter’s documentary on FSHD, (Lexi Pappas – Growing Up With FSHD) and to visit the FSHD Society website. […]
Let’s start a movement!
Overcoming separateness
by Haviva Ner-David, Kibbutz Hannaton, Israel Haviva Ner-David at the 2014 FSHD Connect. Photo by Romana Vysatova. WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and […]
2015 Year-end challenge: Lighting the way to a cure
[…] 24th year, has transformed the world for the 870,000 people living with facioscapulohumeral muscular dystrophy ( FSHD). Our work, fueled by your donations and powered by our staff, Board of Directors, research […]
The Mattering Effect
[…] “Mattering” is a fundamental human need, say psychologists Ora and Isaac Prilleltensky in their recent FSHD Society webinar. They define mattering as the feeling that you are valued, and that […]
Giorgio Tasca wins 2021 Young Investigator Award
Giorgio Tasca, MD PhD The 2021 FSHD Society Young Investigator Award at the International Research Congress was awarded to Giorgio Tasca, MD PhD, a neurologist at the Fondazione Policlinico Universitario […]