[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), will be the beneficiary of a collection of fundraising events this fall. From Boston […]
FSH Society Beneficiary of Variety of Fall Fundraising Events
DIY holiday cards
Many of you have asked if the FSHD Society could provide holiday cards you can send to family and friends, asking for donations. We heard you and have come up […]
Making the Most of the Holidays
A Gift You Give to Yourself! by Leigh Reynolds, FSHD Society Celebrating the holidays can be emotionally draining for many, but for those with a chronic condition like FSH muscular […]
Time equals lives. The parent’s voice
[…] testified at the Voice of the Patient Forum. Her son Noah was diagnosed with the FSHD four years ago, at the age of 10. Unable to keep up with his […]
The community’s role in accelerating therapies
[…] discusses the many ways in which your efforts, as individuals and family members living with FSHD, have paved the way for biopharmaceutical companies to pursue drug development. They truly cannot […]