[…] into the Facebook Live-Stream TUNING IN: Make sure you have ‘liked’ and are following the FSHD Society’s Facebook page @FSHDSociety Login to Facebook. If you login between 10am-2pm ET, and […]
“See You” at the Walk & Roll!
YouTube series on interabled relationships
Meet Jenny and Tony, our new FSHD University “adjunct professors.” Jenny and Tony are a married couple who share information and offer encouragement on their YouTube channel in the context […]
Inclusivity and equity
At the FSHD Society, inclusivity is part of our organizational DNA. We stand firmly against racism and all forms of discrimination as we fight for the lives and well-being of […]
Member of the team
[…] might be helpful to someone trying to decide whether to get involved. My involvement with FSHD clinical studies started in 2016. The first FSHD drug trial in close to a […]
Travel report: Boston Abilities Expo
[…] helpful. One of the many highlights of my trip was meeting June Kinoshita from the FSHD Society and Lexi Pappas a fellow FSHD warrior! I will definitely be coming back […]