Many of you have asked if the FSHD Society could provide holiday cards you can send to family and friends, asking for donations. We heard you and have come up […]
DIY holiday cards
Making the Most of the Holidays
A Gift You Give to Yourself! by Leigh Reynolds, FSHD Society Celebrating the holidays can be emotionally draining for many, but for those with a chronic condition like FSH muscular […]
Time equals lives. The parent’s voice
[…] testified at the Voice of the Patient Forum. Her son Noah was diagnosed with the FSHD four years ago, at the age of 10. Unable to keep up with his […]
The community’s role in accelerating therapies
[…] discusses the many ways in which your efforts, as individuals and family members living with FSHD, have paved the way for biopharmaceutical companies to pursue drug development. They truly cannot […]
“See You” at the Walk & Roll!
[…] into the Facebook Live-Stream TUNING IN: Make sure you have ‘liked’ and are following the FSHD Society’s Facebook page @FSHDSociety Login to Facebook. If you login between 10am-2pm ET, and […]