Meet Jenny and Tony, our new FSHD University “adjunct professors.” Jenny and Tony are a married couple who share information and offer encouragement on their YouTube channel in the context […]
YouTube series on interabled relationships
Inclusivity and equity
At the FSHD Society, inclusivity is part of our organizational DNA. We stand firmly against racism and all forms of discrimination as we fight for the lives and well-being of […]
Member of the team
[…] might be helpful to someone trying to decide whether to get involved. My involvement with FSHD clinical studies started in 2016. The first FSHD drug trial in close to a […]
Travel report: Boston Abilities Expo
[…] helpful. One of the many highlights of my trip was meeting June Kinoshita from the FSHD Society and Lexi Pappas a fellow FSHD warrior! I will definitely be coming back […]
How are you treating symptoms now?
[…] April 21st is our community’s platform to testify to the FDA on the impact of FSHD. When the FDA considers whether to approve a new drug, it needs to know […]