[…] April 21st is our community’s platform to testify to the FDA on the impact of FSHD. When the FDA considers whether to approve a new drug, it needs to know […]
How are you treating symptoms now?
Disappointing news from Acceleron
[…] rare diseases, today announced that treatment with ACE-083 in patients with facioscapulohumeral muscular dystrophy ( FSHD) did not achieve functional secondary endpoints in the Phase 2 trial. Although ACE-083 demonstrated […]
North Carolina Chapter
[…] to the North Carolina Chapter! Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, […]
New York City Chapter
[…] New York/New Jersey-area Chapter! Thank you for visiting the New York/New Jersey-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are […]
Chicagoland Chapter
[…] of the Chicagoland chapter along side my sister Suzanne Kosten. I was officially diagnosed with FSHD in 2018. My mother and brother also have FSHD type 1. Hello my name […]