[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced it has received its sixth consecutive Charity Navigator four-star rating. Scoring 68.40 […]
FSH Society receives sixth consecutive four-star rating
A recap of 2014 research highlights
Check out our press release “A Look Back: FSHD Research Advances in 2014,” which summarizes some important advances in our understanding of medical as well as fundamental scientific issues. These include […]
April patient meetings from coast to coast
[…] month. Find out if there’s one near you: April 12, 2015 3:00 PM EST. An FSHD gathering in Hobe Sound, Florida Join host Mimi Brown and others living with FSHD […]
International facioscapulohumeral muscular dystrophy research conference in Boston
[…] 2015 FSH Society International Research Consortium workshop The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy ( FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October […]
2015 Spring/Summer issue of FSH Watch is out!
[…] FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How does this empower the patient? […]