[…] I don’t think any of my work as an artist really focuses on my having FSHD. I do feel, however, that my art and creativity are among the major things […]
Art lets me grow
Webinar: Stance-control braces
[…] type of leg brace made a difference in her life. In speaking with a leading FSHD physical therapist, we realized that stance control braces are not well-known or widely used […]
Mountains to climb
[…] stood on top of Mt. Kilimanjaro with about 400 other hikers, unfurled my “Stronger than FSHD” sign, which I had made months earlier, and took my summit photo. I wanted […]
Organizing a Walk & Roll ─ if I can do it, so can you!
[…] Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said I’d like to organize a fundraiser. Within […]
A modern take on muscular dystrophies
[…] around specific muscular dystrophies in the age of genomic medicine. Dr. Brout’s grandfather, who had FSHD, co-founded the Muscular Dystrophy Association. When she was diagnosed recently with FSHD, she became […]