[…] around specific muscular dystrophies in the age of genomic medicine. Dr. Brout’s grandfather, who had FSHD, co-founded the Muscular Dystrophy Association. When she was diagnosed recently with FSHD, she became […]
A modern take on muscular dystrophies
Outstanding FSH muscular dystrophy care in Connecticut
[…] Felice, MD, Chief of the Department of Neuromuscular Medicine Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care […]
Our inaugural volunteer leadership summit
[…] about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened for the FSHD Society’s inaugural volunteer leadership summit for two days of intensive learning, sharing, and networking […]
Muscle activation strategies for FSH muscular dystrophy
[…] method, which one of our new Dallas-area members has found very beneficial in addressing his FSHD issues. Note that these methods have not been studied scientifically for efficacy in FSHD; […]
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the […]