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[…] Felice, MD, Chief of the Department of Neuromuscular Medicine Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care […]
Outstanding FSH muscular dystrophy care in Connecticut
Our inaugural volunteer leadership summit
[…] about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened for the FSHD Society’s inaugural volunteer leadership summit for two days of intensive learning, sharing, and networking […]
Muscle activation strategies for FSH muscular dystrophy
[…] method, which one of our new Dallas-area members has found very beneficial in addressing his FSHD issues. Note that these methods have not been studied scientifically for efficacy in FSHD; […]
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the […]
The flu season is upon us. Should you get the vaccine?
FSHD patients may be concerned about the effect of injections on their muscles, and others worry about exposure to chemicals in vaccines, but FSHD medical experts agree that any […]