[…] to serve as a source of information and support for all patients and families with FSHD; to act as a driving force in the development of research directed towards treatment […]
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Why I donated tissue
[…] in Baltimore, Maryland. During that surgery I had the privilege to donate muscle tissue for FSHD research. The donation itself was relatively simple. The paperwork prior to the surgery was […]
Gimpy girl goes birding
[…] fight back against FSH muscular dystrophy. Most of my friends and family know I have FSHD. This isn’t a new diagnosis, and living fully with this disease has kept me […]
2017 Festive Evening Stay-at-Home Campaign
[…] Committee will miss seeing you in person this year. Why we do what we do. FSHD can rob you of your ability to smile. Weaken your legs so you can’t […]
Facio selects first series of potential drug development candidates
We are sharing this news release from Facio, the Netherlands-based biotech founded by FSHD advocates and business leaders with the sole mission of developing treatments for FSHD. In this story, […]