[…] if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous mutation. […]
Why I made the FSH Society a beneficiary in my will
UC Irvine recruiting volunteers for study
Volunteers who are 18 to 55 years of age with FSHD are needed for a study to evaluate functional mobility. The principal investigator is Jay Han, MD, of the University […]
DUX4-suppressing therapies are nearing the clinic
From our 2018 FSHD Connect conference, researchers present their work on therapies to suppress the toxic DUX4 gene. Two companies may be going into clinical trials in 2019. This is […]
The Watch has landed!
[…] highlights include: -Jim Chin elected Chair of the Board -Announcing: Walk & Roll to Cure FSHD! -The DUX gene may have a starring role in biology -IRC & FSHD Connect […]
Facio selects first series of potential drug development candidates
We are sharing this news release from Facio, the Netherlands-based biotech founded by FSHD advocates and business leaders with the sole mission of developing treatments for FSHD. In this story, […]