[…] highlights include: -Jim Chin elected Chair of the Board -Announcing: Walk & Roll to Cure FSHD! -The DUX gene may have a starring role in biology -IRC & FSHD Connect […]
The Watch has landed!
DUX4-suppressing therapies are nearing the clinic
From our 2018 FSHD Connect conference, researchers present their work on therapies to suppress the toxic DUX4 gene. Two companies may be going into clinical trials in 2019. This is […]
UC Irvine recruiting volunteers for study
Volunteers who are 18 to 55 years of age with FSHD are needed for a study to evaluate functional mobility. The principal investigator is Jay Han, MD, of the University […]
Why I made the FSH Society a beneficiary in my will
[…] if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous mutation. […]
Help Wanted: UC Irvine study seeks volunteers
[…] to the initial notice calling for volunteers to participate in the UC Irvine study of FSHD. The study seeks to investigate a new method to measure functional mobility in the […]