by June Kinoshita, FSHD Society “Nothing about us without us” has been the mantra of disability rights advocates for decades, but when it comes to Hollywood, the number of feature […]
“Good Bad Things” is for everyone
Ask the Physical Therapist: How much is too much exercise and “pinging” in an arm
[…] “feel the burn” until it’s too late. Is this a normal response to exercise among FSHD patients? To preface my query: I have FSH muscular dystrophy but am what I […]
Nerve mobility and pain
[…] a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information below, you’ll find a downloadable list of her exercises […]
Statins (cholesterol-lowering drugs) and muscular dystrophy
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used […]
Arrowhead’s ARO-DUX4 Trial
[…] and what the side effects of taking it might be How does the medicine work? FSHD is caused by expression of the DUX4 gene in muscles. ARO-DUX4 reduces the expression […]