FSH Society funding leads to breakthroughs. High-profile paper on FSHD published in Cell. Cabianca et al., A Long ncRNA Links Copy Number Variation to a Polycomb/Trithorax Epigenetic Switch in FSHD […]
FSH Society funding leads to breakthroughs.
Women on Wellness – Activities of daily living
[…] Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P PT, 3P MT, 4 CT […]
Dancer with FSH muscular dystrophy has a documentary dream
[…] with FSH muscular dystrophy. Donna told me of her life-long love of dance, and how FSHD had gradually limited her muscle movement, flexibility and range of motion. She shared with me […]
I still have joy in my life
[…] adult life, I was focused on my severe scoliosis, but in 2004 I was diagnosed with FSHD by a neurologist who did nerve conduction tests and other assessments. I remember him […]
New brochure on facioscapulohumeral muscular dystrophy
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]