[…] and fearless ambassadors, but also the small (yet no less important) accomplishments that individuals with FSHD experience every day. To celebrate the strength of our Society, please share your own […]
We Want You to #ShareYourVictory!
Falling backwards and what to do about it
[…] concussions. 6. One member brought up a positive Beevor sign, which is an indicator of FSHD demonstrated with weak lower abdominal muscles. 7. Many shared that they feel unstable when […]
How postural changes lead to pain
[…] and core as active as possible.” – Ulrike Uta At this month’s Feeling Fit with FSHD sessions, physiotherapist Ulrike Uta, MSc, MCSP, of the Muscular Dystrophy Support Centre in Coventry, […]
Thank you, Spencer and Carden!
[…] Society. Before taking the course, Spencer and his sister, Carden, described their family’s experience with FSHD. If you missed it, watch a recap of their inspirational story here. Carden created […]
FSH Society funding leads to breakthroughs.
FSH Society funding leads to breakthroughs. High-profile paper on FSHD published in Cell. Cabianca et al., A Long ncRNA Links Copy Number Variation to a Polycomb/Trithorax Epigenetic Switch in FSHD […]