[…] Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P PT, 3P MT, 4 CT […]
Women on Wellness – Activities of daily living
Dancer with FSH muscular dystrophy has a documentary dream
[…] with FSH muscular dystrophy. Donna told me of her life-long love of dance, and how FSHD had gradually limited her muscle movement, flexibility and range of motion. She shared with me […]
I still have joy in my life
[…] adult life, I was focused on my severe scoliosis, but in 2004 I was diagnosed with FSHD by a neurologist who did nerve conduction tests and other assessments. I remember him […]
New brochure on facioscapulohumeral muscular dystrophy
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
Virginia Chapter
Welcome to the Virgina Chapter! Thank you for visiting the Virgina Chapter of the FSHD Society which officially launched in May 2021. We are here to build a local community […]