[…] true. But for a significant number, the symptoms can worsen suddenly, sometimes overnight. Whether one’s FSHD is slow or fast moving, the losses of strength and function tally up year […]
Time equals lives. The patient’s voice
David Younger on managing difficult emotions
[…] and mindfulness training are not just theoretical, but part of his lived experience. In this FSHD University webinar, Younger takes you through one of his favorite mindfulness practices. He demystifies […]
Mid-Atlantic Chapter
Welcome to the Mid-Atlantic Chapter! Thank you for visiting the Mid-Atlantic Chapter of the FSHD Society which officially launched in 2018. We are here to build a local community of […]
Thank You for Submitting Your Matching Gift
[…] matching gifts are one of the easiest ways you can maximize your donations to the FSHD Society. Your generosity supports FSH Muscular Dystrophy patients and families today and helps us […]
Wellness
For many people living with FSHD, the anxiety and stress of coping with disability, pain, fatigue, and interactions with others can be just as debilitating as the loss of muscle […]