[…] and mindfulness training are not just theoretical, but part of his lived experience. In this FSHD University webinar, Younger takes you through one of his favorite mindfulness practices. He demystifies […]
David Younger on managing difficult emotions
Drug Development Pipeline
[…] anti-DUX4 drugs have progressed along the path to FDA approval. DUX4 is considered a key gene causing FSHD Types 1 and 2. Patient Data Powers Breakthroughs Get email alerts. Join our Research […]
International facioscapulohumeral muscular dystrophy research conference in Boston
[…] 2015 FSH Society International Research Consortium workshop The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy ( FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October […]
2015 Spring/Summer issue of FSH Watch is out!
[…] FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How does this empower the patient? […]
Time equals lives. The patient’s voice
[…] true. But for a significant number, the symptoms can worsen suddenly, sometimes overnight. Whether one’s FSHD is slow or fast moving, the losses of strength and function tally up year […]