[…] anti-DUX4 drugs have progressed along the path to FDA approval. DUX4 is considered a key gene causing FSHD Types 1 and 2. Patient Data Powers Breakthroughs Get email alerts. Join our Research […]
Drug Development Pipeline
Virginia Chapter
Welcome to the Virgina Chapter! Thank you for visiting the Virgina Chapter of the FSHD Society which officially launched in May 2021. We are here to build a local community […]
I still have joy in my life
[…] adult life, I was focused on my severe scoliosis, but in 2004 I was diagnosed with FSHD by a neurologist who did nerve conduction tests and other assessments. I remember him […]
Women on Wellness – Activities of daily living
[…] Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P PT, 3P MT, 4 CT […]
How postural changes lead to pain
[…] and core as active as possible.” – Ulrike Uta At this month’s Feeling Fit with FSHD sessions, physiotherapist Ulrike Uta, MSc, MCSP, of the Muscular Dystrophy Support Centre in Coventry, […]