by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting. […]
Your practical guide to clinical trials
Falling backwards and what to do about it
[…] concussions. 6. One member brought up a positive Beevor sign, which is an indicator of FSHD demonstrated with weak lower abdominal muscles. 7. Many shared that they feel unstable when […]
Statins (cholesterol-lowering drugs) and muscular dystrophy
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used […]
Arrowhead’s ARO-DUX4 Trial
[…] and what the side effects of taking it might be How does the medicine work? FSHD is caused by expression of the DUX4 gene in muscles. ARO-DUX4 reduces the expression […]
Nerve mobility and pain
[…] a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information below, you’ll find a downloadable list of her exercises […]