[…] of genetic tests assessing disease-associated chromosomal abnormalities. Their lead indication is Facioscapulohumeral Muscular Dystrophy ( FSHD). FSHD is one of the most prevalent forms of muscular dystrophy and affects approximately […]
New genetic test being developed for FSHD
Patient-Focused Drug Development Meeting for FSHD
The FSHD Society announced today that the U.S. Food and Drug Administration (FDA) has approved its application to hold an externally led Patient-Focused Drug Development (EL-PFDD) meeting on facioscapulohumeral muscular […]
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
https://www.youtube.com/watch?v=2GOgTBvu-GY The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build […]
European FSHD patients speak out
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe Sheila Hawkins (far right), president of FSHD Europe […]
True Cost of FSHD
[…] of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society When living with FSHD, the costs can add up: insurance and medical bills, […]