https://www.youtube.com/watch?v=2GOgTBvu-GY The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build […]
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
The FSHD Navigator
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]
European FSHD patients speak out
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe Sheila Hawkins (far right), president of FSHD Europe […]
True Cost of FSHD
[…] of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society When living with FSHD, the costs can add up: insurance and medical bills, […]
Team Up to End FSHD through the Walk & Roll
Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up – […]