This year, the FSHD Society – empowered by you – launched an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, government agencies, and families […]
The 2019 Year-End Report
Mid-Atlantic Chapter
Welcome to the Mid-Atlantic Chapter! Thank you for visiting the Mid-Atlantic Chapter of the FSHD Society which officially launched in 2018. We are here to build a local community of […]
April patient meetings from coast to coast
[…] month. Find out if there’s one near you: April 12, 2015 3:00 PM EST. An FSHD gathering in Hobe Sound, Florida Join host Mimi Brown and others living with FSHD […]
A recap of 2014 research highlights
Check out our press release “A Look Back: FSHD Research Advances in 2014,” which summarizes some important advances in our understanding of medical as well as fundamental scientific issues. These include […]
FSH Watch Fall 2011
Highlights include: Scapulothoratic fusion in FSHD: a surgical wiring technique has been utilized for fixation of the scapula to the adjacent ribs New books for your consideration Pregnancy and birth […]