by HILARY A. C. HOOVER, Ocala, Florida I tested positive for the FSHD gene and am currently asymptomatic. Due to my status, I was asked to donate muscle tissue via open […]
Giving a piece of me for research
FSH Society receives sixth consecutive four-star rating
[…] charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced it has received its sixth consecutive Charity Navigator four-star rating. Scoring 68.40 […]
Swallowing and speech in FSH muscular dystrophy
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing […]
Peace Joy Gratitude
[…] our meetings and conferences. You have activated an environment that is nurturing therapeutics development for FSHD. This makes possible: the phase 2b clinical trial of ACE-083; clinical trials for DUX4-repressing […]
Holiday gift ideas
[…] hear about your best holiday gift ideas in the comments section! Reusable drinking straws. While FSHD can make it hard for some to sip through a straw, many others rely […]