[…] Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as she hopes to […]
Carden Wyckoff on Living with Muscular Dystrophy
Report from Sacramento
[…] had 10 attendees from the larger Sacramento area. About half the attendees were affected by FSHD and the other half were family members. Ages ranged from twenties to retired. The […]
Watch DUX4 switch on in facioscapulohumeral MD muscle cells
[…] (ntGFP) engineered to cause cell nuclei to glow green when the DUX4 protein is expressed in FSHD muscle cells. As green nuclei cluster and intensify in color, you can see the […]
Webinar with Dr. Rabi Tawil
[…] summary: Evaluation, diagnosis, and management of facioscapulohumeral muscular dystrophy,” the first such care guideline for FSHD, which was published this past July in the journal Neurology. You can download and […]
#GivingTuesday matching gift challenge!
[…] Tuesday, please consider supporting efforts to make a brighter future for all who live with FSHD by taking these two simple steps! Make a donation here. Every gift donated this […]