[…] to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These conditions include FSHD, the limb-girdle muscular dystrophies (LGMDs), Pompe disease and HIBM (Hereditary inclusion body myopathies). Four $3,000 […]
Scholarship rewards students for spreading muscular dystrophy awareness
Staples Grant to Support Scholarship
[…] Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such as a social media awareness raising scholarship competition administered by the Jain Foundation. Eligible […]
FSH Society newly awarded grants
[…] include projects to advance a gene therapy method, study how the DUX4 gene (which causes FSHD) can damage muscles, identify genes that modify DUX4 toxicity, investigate a drug that may […]
American Ninja Warrior features our Ambassador
[…] his sister, to raise awareness of FSH muscular dystrophy. Spencer says his sister’s experience with FSHD has made her who she is; organized, motivated, a force for change and a […]
FSH Society will keep an eye on Washington DC
[…] the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. While it is impossible to foresee the possible changes, we want to assure you […]