Shared by ANTHONY MANNUZZA, Woodhaven, New York Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have […]
Accessibility Hack: Sandals for the shower
Seeking nominations for 2018 FSH Society Community Award
[…] Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years, the Community Award in 2016 recognized David Housman, chair […]
Tips for getting your insurer to approve genetic testing
[…] and families who are having difficulty getting an insurer to pay for genetic testing of FSHD. It is our impression that the payors are denying claims based on incorrect assumptions […]
FSH Society Talk Radio, On-air Support Group
[…] Hollenback at 949-270-5953 to ask questions and tell us about you. We’ll be joined by FSHD ambassadors Carden Wyckoff and Lexi Pappas, who each have great stories to share. If […]
#GivingTuesday 2017 is Just Around the Corner!
[…] in our efforts to raise even more funds this year to support those affected by FSHD and to fund important research to take one step closer towards finding a cure! […]