[…] brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great supporters, video editors […]
Check out our Orange Slice Selfies Video!
Pappas Family Featured on Fox 25 Boston!
Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in […]
Into the Light Wins Three Awards at Best Shorts Film Competition
[…] the Light features the powerful story of high-school senior Sarah Geissler, who is living with FSHD, and her experience with FSH muscular dystrophy, a rare genetic muscle-weakening disease that affects […]
Double Your Donation… Easily and Free!
[…] the form online on their website. Otherwise, you may mail the completed form to the FSHD Society, and we’ll handle the rest: FSHD Society ATTN: Dermot Whittaker 450 Bedford Street […]
Speaking honestly
[…] it an ideal place for her family. Chelsea also shares a deeply personal connection to FSHD, navigating life with the condition herself. Her journey inspired her to create HonestlyFSHD, a […]