Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
Connecting generosity with purpose
Changemaker: Marisa Spain
[…] Sverdrup, creating a safe, open space for people of all ages who were diagnosed with FSHD early in life. The group meets monthly, focusing on shared experiences and life hacks […]
Sacramento meeting report
[…] had a new attendee who moved from Monterey and had never met another person with FSHD until a few years ago when she met the daughter’s of the FSH Society […]
David Glass elected to the National Academy of Sciences
Co-chair of the Society’s Scientific Advisory Board receives one of highest honors in science The FSHD Society is proud to share the news that David J. Glass, MD, co-chair of […]
2013 Festive Evening of Song raises record amount
[…] highest order. He keeps up a strenuous schedule of performances and teaching. It’s not his FSHD that worries him, he jokes, but how he’s going to get through 18 concerts […]