[…] be sharing these stories from fellow FSH Society members that demonstrate how they won’t let FSHD stand in their way. Your support is life-changing to those in the Society and with […]
Looking Back on A Year Full of Strength, Part 2
FSH Watch Issue 3 is out!
[…] the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also contains updates on the research projects being funded by the FSH Society […]
Participate in our survey on the impact of FSH muscular dystrophy
[…] share with you a survey containing questions to help researchers better understand the impact of FSHD on patients and caregivers. The survey was developed collaboratively by Acceleron Pharma, aTyr Pharma, […]
Marijuana and CBD
[…] and Lou Casella. They shared their experiences using cannabis-based products to address a variety of FSHD-related issues. Others shared their experiences as well, for a highly informative and interesting evening. […]
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch their experience on WSB-TV Atlanta! In total, 25 family members, […]