[…] and Lou Casella. They shared their experiences using cannabis-based products to address a variety of FSHD-related issues. Others shared their experiences as well, for a highly informative and interesting evening. […]
Marijuana and CBD
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch their experience on WSB-TV Atlanta! In total, 25 family members, […]
FSH Society will keep an eye on Washington DC
[…] the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. While it is impossible to foresee the possible changes, we want to assure you […]
2023 International Research Congress summary
The journal Neuromuscular Disease has published a summary of the FSHD Society’s 2023 scientific conference held in Milan, Italy, this past June. The article was co-authored by Jamshid Arjomand, PhD, […]
Avidity Announces New Positive AOC 1001 Data
[…] tolerability with over 200 infusions totaling 46.2 patient-years of exposure.” What does this mean for FSHD? The company is developing a similar drug, AOC 1020, for FSH muscular dystrophy, which […]