[…] the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. While it is impossible to foresee the possible changes, we want to assure you […]
FSH Society will keep an eye on Washington DC
2023 International Research Congress summary
The journal Neuromuscular Disease has published a summary of the FSHD Society’s 2023 scientific conference held in Milan, Italy, this past June. The article was co-authored by Jamshid Arjomand, PhD, […]
Avidity Announces New Positive AOC 1001 Data
[…] tolerability with over 200 infusions totaling 46.2 patient-years of exposure.” What does this mean for FSHD? The company is developing a similar drug, AOC 1020, for FSH muscular dystrophy, which […]
An ounce of prevention…
[…] are the second most common cause of injury leading to death. For a person with FSHD, falling and breaking a bone may be the incident that leads to becoming reliant […]
Walk Roll Volunteer Resources
[…] SPARK Engagement, Connection, Community, and Action! You’ll find essential information such as updates from the FSHD Society, ready access to forms and documents, upcoming training opportunities, access to past trainings […]