[…] Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a client with FSHD, on fitting her with a brace. She provides an excellent explanation of the mechanics […]
Stance-control brace webinar [VIDEO]
Our next radio guest is Alan Brown of NFL Films
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
Meet Dan Levy of Schitt’s Creek!
[…] is that every donation for the chance to win will support the amazing work of FSHD Society, a cause close to Dan’s heart. His aunt Gayle has FSHD and is […]
Activate! NFL Films’ Alan Brown
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
The Future is Now for Clinical Trials
[…] been promised for decades that “one day in the future” there will be treatments for FSHD, and so it’s amazing to realize that day is almost upon us. The future […]