The FSHD Society is partnering with researchers on an important study of the impact of COVID-19 on the muscular dystrophy community. Please read this letter from Dr. Rabi Tawil and […]
Participate in COVID-19 Survey
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana Lynn Stevens About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to […]
ReDUX4 clinical trial update
[…] currently underway testing the safety and efficacy of losmapimod to treat facioscapulohumeral muscular dystrophy ( FSHD). The company started recruiting volunteers for the trial in August of 2019 and completed […]
Notes on spinal and scapular surgery
[…] manifest symptoms from an early age. Drs. Lark and Hubbard note that people with early-onset FSHD can develop rapid weakening of the hip girdle muscles. It is this hip girdle […]
우리의 이야기
[…] 단체이며, 근이영양증 중의 하나인 안면 견갑 상완근 이영양증 (얼굴 어깨 팔근육 퇴행위축, facioscapulohumeral muscular dystrophy, FSHD)에 대해 연구 및 교육을 지원하고 있습니다. FSH협회는 1991년, 안면 견갑 상완근 이영양증 환우인 스티브 […]