[…] include projects to advance a gene therapy method, study how the DUX4 gene (which causes FSHD) can damage muscles, identify genes that modify DUX4 toxicity, investigate a drug that may […]
FSH Society newly awarded grants
Staples Grant to Support Scholarship
[…] Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such as a social media awareness raising scholarship competition administered by the Jain Foundation. Eligible […]
ICD-10
[…] be easily recognized within a health information system. Assigning an individual ICD 10 codes for FSHD will: facilitate the surveillance of FSHD; will allow more accurate estimates of the condition’s […]
Scholarship rewards students for spreading muscular dystrophy awareness
[…] to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These conditions include FSHD, the limb-girdle muscular dystrophies (LGMDs), Pompe disease and HIBM (Hereditary inclusion body myopathies). Four $3,000 […]
Overcoming communication barriers with Project Relate
[…] mouth. This can affect the ability to smile and can impair speech. Many people with FSHD experience the frustration of not being able to communicate easily. So we were excited […]