[…] his sister, to raise awareness of FSH muscular dystrophy. Spencer says his sister’s experience with FSHD has made her who she is; organized, motivated, a force for change and a […]
American Ninja Warrior features our Ambassador
Int’l Research Congress Planning Committee
[…] genetic features of facioscapulohumeral muscular dystrophy, both in childhood and adulthood.She is involved in the FSHD natural history studies at the Radboudumc (FOCUS and iFOCUS), and has started to study […]
Losmapimod continues to show promise
[…] leading to study drug discontinuation were reported through 96 weeks of dosing,” Fulcrum noted. “Every FSHD patient faces relentless and accumulating muscle and functional loss. These long-term data further demonstrate […]
FSH Society newly awarded grants
[…] include projects to advance a gene therapy method, study how the DUX4 gene (which causes FSHD) can damage muscles, identify genes that modify DUX4 toxicity, investigate a drug that may […]
Staples Grant to Support Scholarship
[…] Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such as a social media awareness raising scholarship competition administered by the Jain Foundation. Eligible […]