The recent news that Lululemon founder Chip Wilson is committing $100 million USD to targeted FSHD research over the next six years has been called ‘game-changing’,generating tremendous excitement and hope […]
What is SOLVE FSHD?
Team Up to End FSHD through the Walk & Roll
Together, we move toward a cure Ending FSHD will take all of us and the Walk & Roll to Cure FSHD makes it easy for everyone to team up – […]
True Cost of FSHD
[…] of our battle plan to ensure patients will have access to treatments by June Kinoshita, FSHD Society When living with FSHD, the costs can add up: insurance and medical bills, […]
European FSHD patients speak out
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe Sheila Hawkins (far right), president of FSHD Europe […]
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
[…] that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy ( FSHD), today announced the introduction of the first-ever care guideline for FSHD by the American […]