[…] had 10 attendees from the larger Sacramento area. About half the attendees were affected by FSHD and the other half were family members. Ages ranged from twenties to retired. The […]
Report from Sacramento
Carden Wyckoff on Living with Muscular Dystrophy
[…] Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as she hopes to […]
ReDUX4 clinical trial update
[…] currently underway testing the safety and efficacy of losmapimod to treat facioscapulohumeral muscular dystrophy ( FSHD). The company started recruiting volunteers for the trial in August of 2019 and completed […]
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana Lynn Stevens About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to […]
Participate in COVID-19 Survey
The FSHD Society is partnering with researchers on an important study of the impact of COVID-19 on the muscular dystrophy community. Please read this letter from Dr. Rabi Tawil and […]