[…] currently underway testing the safety and efficacy of losmapimod to treat facioscapulohumeral muscular dystrophy ( FSHD). The company started recruiting volunteers for the trial in August of 2019 and completed […]
ReDUX4 clinical trial update
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana Lynn Stevens About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to […]
Participate in COVID-19 Survey
The FSHD Society is partnering with researchers on an important study of the impact of COVID-19 on the muscular dystrophy community. Please read this letter from Dr. Rabi Tawil and […]
Not Eligible for a Matching Gift?
[…] Grants Some employers offer special grants when their employees volunteer with certain organizations like the FSHD Society. These are great when working with one of our local chapters! Search for […]
The Future is Now for Clinical Trials
[…] been promised for decades that “one day in the future” there will be treatments for FSHD, and so it’s amazing to realize that day is almost upon us. The future […]