[…] Grants Some employers offer special grants when their employees volunteer with certain organizations like the FSHD Society. These are great when working with one of our local chapters! Search for […]
Not Eligible for a Matching Gift?
The Future is Now for Clinical Trials
[…] been promised for decades that “one day in the future” there will be treatments for FSHD, and so it’s amazing to realize that day is almost upon us. The future […]
Activate! NFL Films’ Alan Brown
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
Meet Dan Levy of Schitt’s Creek!
[…] is that every donation for the chance to win will support the amazing work of FSHD Society, a cause close to Dan’s heart. His aunt Gayle has FSHD and is […]
우리의 이야기
[…] 단체이며, 근이영양증 중의 하나인 안면 견갑 상완근 이영양증 (얼굴 어깨 팔근육 퇴행위축, facioscapulohumeral muscular dystrophy, FSHD)에 대해 연구 및 교육을 지원하고 있습니다. FSH협회는 1991년, 안면 견갑 상완근 이영양증 환우인 스티브 […]