[…] North Carolina Chapter “Third Thursdays” Previous Events Click to select today’s date Virtual Chapter Meeting FSHD Society virtual chapter meeting Welcome to the Atlanta Chapter-min Welcome to the Atlanta Chapter-min […]
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Our Team
[…] going, but a place we are creating. First in mind…next in will…then in activity. The FSHD Society’s dedicated staff and committed volunteers bring extraordinary knowledge, expertise, organizational skills, and a […]
Opera legend Frederica von Stade to sing for FSH Society
[…] of the FSH Society, raising critical funds for scientific research on facioscapulohumeral muscular dystrophy ( FSHD). Blier, who is known to Bay Area music lovers through his long association with […]
Our next radio guest is Alan Brown of NFL Films
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
Stance-control brace webinar [VIDEO]
[…] Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a client with FSHD, on fitting her with a brace. She provides an excellent explanation of the mechanics […]