[…] Sverdrup, creating a safe, open space for people of all ages who were diagnosed with FSHD early in life. The group meets monthly, focusing on shared experiences and life hacks […]
Changemaker: Marisa Spain
Connecting generosity with purpose
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
Speaking honestly
[…] it an ideal place for her family. Chelsea also shares a deeply personal connection to FSHD, navigating life with the condition herself. Her journey inspired her to create HonestlyFSHD, a […]
FSH Watch Winter 2009
[…] University of Maryland, Baltimore Jacobs Family Post-doctoral Research Award established. Family picnic raises funds for FSHD fellowship. FSH Society Annual Donor Report And much more! Read or download the full […]
FSH Watch Spring 2009
Highlights include: First muscle biopsies arrive at the NIH BBRI Senator Paul Wellstone FSHD Center Charity Navigator rates FSH Society ✭✭✭✭! A festive evening of music and song raises over […]