[…] of the FSH Society, raising critical funds for scientific research on facioscapulohumeral muscular dystrophy ( FSHD). Blier, who is known to Bay Area music lovers through his long association with […]
Opera legend Frederica von Stade to sing for FSH Society
Our next radio guest is Alan Brown of NFL Films
[…] programs, feature films, and documentaries for and about the National Football League (NFL). Alan has FSHD in his family. “My great-grandmother, grandmother, mother and brother all had/have it,” he says. […]
Stance-control brace webinar [VIDEO]
[…] Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a client with FSHD, on fitting her with a brace. She provides an excellent explanation of the mechanics […]
A surprise $50K gift
[…] of directors, donated funds for travel scholarships so that 20 patients could attend our 2018 FSHD Connect conference in Las Vegas, he had no inkling of the dividends his gift […]
FSH Society Radio on Living, Loving, Caring, Sharing
[…] their family and professional experience, the Prilleltenskys will discuss the emotional and relational side of FSHD. Ora, who uses an electric wheelchair, was diagnosed with FSHD at age 18. She […]