[…] of directors, donated funds for travel scholarships so that 20 patients could attend our 2018 FSHD Connect conference in Las Vegas, he had no inkling of the dividends his gift […]
A surprise $50K gift
FSH Society Radio on Living, Loving, Caring, Sharing
[…] their family and professional experience, the Prilleltenskys will discuss the emotional and relational side of FSHD. Ora, who uses an electric wheelchair, was diagnosed with FSHD at age 18. She […]
Surgery fixed my eye problems
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully, […]
The 11-step challenge
[…] FSH Society. You are the very soul of persistence. Figuratively, each of you living with FSHD takes “11 more steps” every day by: rising hours earlier than others just to […]
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted […]