by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully, […]
Surgery fixed my eye problems
The 11-step challenge
[…] FSH Society. You are the very soul of persistence. Figuratively, each of you living with FSHD takes “11 more steps” every day by: rising hours earlier than others just to […]
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted […]
Scooting around unconscious biases
[…] Hughes Goodman’s (DHG) South region. I also happen to live with facioscapulohumeral muscular dystrophy ( FSHD). You may have seen me riding my red scooter (aka “Big Red”) around downtown […]
FSH Society Talk Radio: Marketer, mom, and advocate Taylor Quigg
[…] and mother of two who lives in the suburbs of Philadelphia. Taylor was diagnosed with FSHD in 2014 when she was eight weeks pregnant with her second daughter. She has […]