[…] of one of their employees, Angela Farkas, in sharing her story and her struggle with FSHD. We want to share her story with you, too: Angela Farkas was raised in […]
Adveq Provides FSH Society Generous Gift After Witnessing Employee’s Journey
FSH Watch Winter 2014
[…] and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos and stories from the Celebrity Walk ‘n’ Roll, New […]
FSH Watch Summer/Fall 2014 issue is out
[…] include: Annual research report, with updates from FSH Society grant recipients. Groundbreaking study establishing that FSHD may be the most prevalent of muscular dystrophies. A new NIH-funded Wellstone Center for […]
Remembering Carol Perez
[…] of Carol Anne Perez’s death at age 76, on February 3, 2012, from respiratory complications of FSHD. Many patients remember Carol as the person on the other end of the phone […]
#CureFSHD. Share an image. Change a life.
You can share images and facts about FSHD over your social media channels by visiting our #CureFSHD campaign page here.