[…] it does not have me by DAVID YOUNGER, PhD Austin, Texas I was diagnosed with FSHD when I was about four, at the same time my mother and grandmother were […]
Moving toward well-being
Mark Stone webinar now available
[…] In this webinar, Mark shares his experiences over the past six months learning about the FSHD community, and lays out his vision for how the FSH Society will empower families […]
Rare Disease Day Rare Talent Challenge
[…] better. Share a video or photo of your rare talent via social media using # FSHDRareTalent Tag three friends asking them to share their rare talents via social. In lieu […]
FSH Watch Winter 2014
[…] and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos and stories from the Celebrity Walk ‘n’ Roll, New […]
The Physiatrist’s role in managing FSH muscular dystrophy
[…] never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, […]