[…] better. Share a video or photo of your rare talent via social media using # FSHDRareTalent Tag three friends asking them to share their rare talents via social. In lieu […]
Rare Disease Day Rare Talent Challenge
FSH Watch Winter 2014
[…] and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos and stories from the Celebrity Walk ‘n’ Roll, New […]
The Physiatrist’s role in managing FSH muscular dystrophy
[…] never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan Ability Lab in Chicago, […]
Accessibility Hacks, mobility aids, and tips (Part 3 of 3)
[…] of us) and four years later are still using the same one. This isn’t really FSHD specific, but many of us are at the age when hearing aids are in […]
We bring people together to fight FSH muscular dystrophy
[…] another to form a clinical trial research network, which is vital to the future of FSHD clinical trials. All of this is possible because of your loyal and generous support […]