[…] us about his experiences riding in the cross-continental Race Across America this summer with Team FSHD Cycling. Despite the toll FSHD has taken on his body, Steven Blier continues to […]
Radio Show – Steven Blier, musician extraordinaire
FSH Society Talk Radio: Interview with Dr. Charis Himeda
[…] many years, and is currently using cutting-edge technologies to examine mechanisms of epigenetic dysregulation in FSHD muscle cells and explore potential avenues of therapy. In 2016, Dr. Himeda received the […]
In memorium: Richard Lefebvre, former FSH Society Board member
[…] hospitals. Lefebvre was Secretary of the FSH Society Board of Directors from 1991-2007. As an FSHD patient, he was interested in expediting a solution to the FSHD problem. Mr. Lefebvre […]
A Segway for mobility
[…] a Segway I immediately recognized it as something that could possibly help my mobility. My FSHD had progressed to the point where I was having difficulty walking. At my first […]
FSH Society Talk Radio with Dr. Charis Himeda
[…] many years, and is currently using cutting-edge technologies to examine mechanisms of epigenetic dysregulation in FSHD muscle cells and explore potential avenues of therapy. In 2016, Dr. Himeda received the […]